Question

Consider the following scenario: Your child has two neurological conditions- Autism spectrum disorder and Lennox Gastaut syndrome, which often presents with difficult to manage seizures particularly at night. Your neurologist mentions to you that there is a risk for sudden unexpected death relating to seizures that occur at night. There are several wearable bracelets on the market available for purchase that you could place on your child and alerting you whenever your child has a seizure.   The other option is to simply buy a baby monitor that alerts you just as well as the bracelet. The bracelets are only available as part of a subscription monitoring service that calls you whenever the system detects a seizure and an agreement by those who are on the service to allow for their medical information to be used privately by the company so as to improve the service they provide to you. The company also states that on occasion they sell your data to third party companies for research purposes only. In your paper, tell me whether you would subscribe to the service with the wearable bracelet. Spell out the Pros and Cons of your choice particularly as it relates to privacy and monitoring. Comment on at what point does the loss of privacy from using a wearable device become too big of a risk for you so as not to wear the device.

300-500 words requried , thank you

Answer 1

I am more concerned about my child's health than the data that could be used for research purpose as it is with my consent only so it's not an issue for me infront of my child . I would use it to alert myself when my child gets seizure and make sure he gets the necessary healthcare services .

#. Pros include - monitoring of seizure , make us alert of the situation at night , helpful in managing the seizure early without wasting time

Cons include - impairment of privacy , health data used by third party for research purpose without consenting, high maintainance cost etc

#. When it would be a threat to the privacy .