Question

1. How do you adequately provide training & support services to the families of children with chronic conditions? What kind of training & support services should be considered?

Please write two paragraphs answering the above question. Include credible citations.Thank you

Answer 1

When a child with chronic illness the entire family experience a lot of problems.These chronic health situations will affect their whole life most probably.Parents of those children may feel disappointment as well as emotional insecurity.Most of these illness may need prolonged hospitalizaton initially,later on frequent hospital visits.Those families  life patterns,daily routines everything got changed .They need to attain a new life style in regard of this particular situation.So the family need to be trained and supported properly.Parents should need enough time to adjust the particular scenario. 1. First of all consider their anxiety and stress related mental and psychological problems.Provide proper guidence and listen to them carefully.Arrange a monthly meeting with them initially and then arrange it accordingly as per their convenience. 2 .Secondly many cases with prolonged disabilities ,behavioural and developmental isssues should require extreme parental skills and support.For example children with autisum,and asthma  always needs special care from parents or family than a health care provider .Studies proved that the effectiveness of that care.There are many more conditions like astma and autisum.Training should be provided as per the condition of child.They must be trained for behavioural therapy courses,use of nebulizer,puffs.oxygen administration.3.Most of the cases child may not understand his or her situation properly.Support them according to their age and condition. The child must be protected from mental ,physical and sexual abuse also. More over the concerned health care provider should organise the care schedule as per the families convenience.If everything is organised thier stress level wll be low.Arrange the procedures and other care according to the child's choice also .Instruct the parents to monitor their social interacting and communication aspects too.For that Include the child in the family programmes and activities .Especially allow them to interact with their peer groups.If the situation granted communicate with their school too. And let the parents should interact with other parents  those who are facing same condition . It will enhance their level of confidence and energy. In addition to that arrange some books and encourage the children to read . Those who have delay in language instruct the parents to read the books for child .Arrange some programmes to improve the cognitive skills too.  Our aim is the ultimate emotional,mental,social and physical development of the child while treating them with the chronic ailment.