Question

Publicly available DNA databases, like GenBank through the National Institutes of Health, are a useful resource...

Publicly available DNA databases, like GenBank through the National Institutes of Health, are a useful resource for scientists and help improve collaboration by making data freely available. If you were asked to participate in genomic research, would you allow the scientists to put your genome DNA sequence into the public database? Why or why not?

Homework Answers

Answer #1

No.
The publicly available sequences in the databases like NCBI and Uniprot are very useful sources for scientists.
However, these sequences do not belong to a single individual and the identity of the individuals from which these sequences are retrieved is kept confidential.
The same principle is followed while publishing research reports about a disease-condition or case study in which patients sequences were analyzed but their identities are not disclosed.

If the identity of the individual is made public, it may lead to several ethical problems.
For example, an insurance company may charge more premium for persons who possess risk-associated allele in their genome.

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