Publicly available DNA databases, like GenBank through the National Institutes of Health, are a useful resource for scientists and help improve collaboration by making data freely available. If you were asked to participate in genomic research, would you allow the scientists to put your genome DNA sequence into the public database? Why or why not?
No.
The publicly available sequences in the databases like NCBI and
Uniprot are very useful sources for scientists.
However, these sequences do not belong to a single individual and
the identity of the individuals from which these sequences are
retrieved is kept confidential.
The same principle is followed while publishing research reports
about a disease-condition or case study in which patients sequences
were analyzed but their identities are not disclosed.
If the identity of the individual is
made public, it may lead to several ethical problems.
For example, an insurance company may charge more premium for
persons who possess risk-associated allele in their genome.
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